Friday, November 29 2013 5:02 PM EST2013-11-29 22:02:51 GMT
Nevadans are invited to observe World AIDS Day by participating in activities and outreach efforts to increase awareness and prevention of HIV/AIDS.More >>
Nevadans are invited to join public and private organizations to observe World AIDS Day by participating in activities and outreach efforts to increase awareness and prevention of HIV/AIDS.More >>
Abby Alonzo was diagnosed three years ago with Hodgkin lymphoma, a curable cancer that affects the immune system.
"It wasn't as hard on me as I think it was my mom, my brother and my dad."
Then 10 years old, Abby began treatment including chemotherapy. Weeks later she was doing well. But then a drug Abby was getting called mechlorethamine became unavailable because of a shortage. Doctors had to switch to another drug "cyclophosphamide." Studies showed it was a safe and effective alternative.
"We let them go ahead and finish her treatment with that, but then at 12 weeks when we went back for the radiation, we had seen she had relapsed," says mother Katie.
A new study from St. Jude Children's Research Hospital found that 88% of patients who got the original drug - mechloethamine - were cured of their cancer after two years… while only 75% were cancer free after taking the alternative.
"This is the first study to clearly show that when we substitute one drug for what we think is just an equally good drug that's not always going to be the case," says Dr. Richard Gilbertson.
The FDA says a major reason for these drug shortages is because of problems with quality and manufacturing. But the agency has been working with companies to prevent and resolve problems.
Because of the relapse, Abby had to have a bone marrow transplant, radiation and more chemo. Now 13 years old - she's cancer free.
"I mean obviously it could have been a lot worse, I mean what if I relapsed another time?"
The drug Abby needed to fight her cancer back then has only recently become available again.
The FDA says it has been able to prevent close to 100 drug shortages this year.