There is nothing a mother will not do for her child. For Krystal Miller that means learning everything there is to know about her five-year-old's rare disorder.
Doctors diagnosed Keegan with Septo Optic Dysplasia; his brain did not fully develop before birth and his optic nerves are a fraction of the size they should be.
In her research, Krystal realized there are not a lot of resources for children with rare disorders like this. So when she discovered a conference that brings families of such children together in Chicago in July, Krystal is now doing everything she can to get her family there.
Krystal hopes to raise $4,000 in the next few weeks. She says the conference, put on by the Magic Foundation, will be especially beneficial to her family because they will be able to seek support from others who can relate. Also, doctors and experts in these rare disorders will be on hand to educate parents.
So, how does she hope to raise the money needed to travel? Krystal started a fundraiser online called Sweet Treats for Keegan, where she sells a variety of baked goods. Check out https://www.facebook.com/#!/SweetTreatsforKeegan.
Also, on Keegan's sixth birthday, there will be a haircut-a-thon at A Salon 7 on Morrill Avenue in Reno from 11 a.m. to 3 p.m. It will include $15 haircuts, mini manicures and updos. To learn more, head to Krystal's blog: www.ABlindJourney.com.
Krystal is also looking for assistance making A Blind Journey an official 501(c)3. If you can help, email her at keegansblindjourney@gmail.com.
Written by Kristen Remington
